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Oh the joys of having a child with additional and complex needs. It’s EHCP time again. 🤪 The legal document detailing Max’s needs must be accurate to ensure he gets the support he needs to reach his full potential as he transitions to high school. It’s been hanging over me like a black cloud so the big fat Maxipotential file came out today. Job done - phew!
#bigjob #sen #fulltimejob ... See MoreSee Less
Max had an #EOS scan today to see if his new German Gensingen brace is achieving the same correction of his scoliosis as his Silcone Valley one had. We’ll find out next week. Keep you fingers, toes, and eyes crossed for him! 🤞👍 ... See MoreSee Less
I’m really very scared for Max right now. He’s having a dangerous growth spurt. We have to get things right immediately, and things appear to have gone a little pear shaped! ☹️
Our initial delight in finding a UK scoliosis brace solution currently doesn’t appear to be as we thought. It isn’t correcting his curve as much as we believed, and it’s creating very painful sores. Max has grown out of his Silicon Valley brace, so we can’t go back to that, and I can’t fly to take him out to America for a new one. So, we have to make this current Gensingen brace work.
We’re in London and just had some changes made and Max seems happy. Next job is an EOS scan asap at Alderhey Childrens Hospital. Fingers crossed this works for him.🤞
#ouch #pleasepray #scoliosis #maxipotential #baileybunchhalftermholiday 🙄 ... See MoreSee Less
Maxipotential shared New Bailey's event.
Brainwave are the charity that provide the multi-disciplinary therapy that we try to take Max to every six months. They host the Manchester Duck race. Please come an support them at a fun day out. ... See MoreSee Less