What’s the problem?
Bad timing with an imminant need for surgery.
Max’s scoliosis requires surgery before his curve impacts his internal organs and becomes life threatening. It means inserting metal rods along the length of his spine. It’s nasty, invasive surgery leaving a scar the full length of his back. He will require repeated surgeries every 3 to 6 months to lengthen the rods through his growth spurt from age 8 until12 and beyond. Ultimately he’ll likely require his spine fused solid and be left with life-long disability and pain management. There is a better option, but we’ve just sunk our last pennies into creating an adapted accessible home.
How will the money be spent?
Travel, treatment and aftercare.
Max will travel to America to receive 3 weeks of intensive therapy and follow-up equipment and support. The total includes £3,600 for his 3D brace, £4,600 for his home traction chair, approx £8,500 for an adapted wheelchair, and around £5,000 for car adaptation. He will then require daily visits to attend his exercises followed up by a return visit to the centre every three months. If he requires less-invasive keyhole surgery available in America we will raise more. Funds beyond Max’s need will role into our intended charity.